Wednesday, November 19, 2008

Good News


Today is filled with good news!

1st and foremost- Decota had an eye appointment with her retina specialist today. Everything is looking good, no wait, very good. All the inflammation that was spilling over into the back of her eye has gone away. The milkiness and haze in her eye is looking much clearer. There really is only one part of her eye that still has inflammation in it. What does this all mean for us? She will continue to take her pressure drops and nsaid drops in her eye 2x a day, but her steroid drops will now be decreased to ONCE a day. Considering the fact that in January she started using the steroid every hour, and up until July she had only decreased to using them every 2 hours, weaning all the way to 1 time a day in the last 4 months is pretty incredible. This specialist we started seeing in July has been so great for her! She does not have to go back to the eye doctor for 3 months!!! Until July she was going to the eye doctor every week for months at one point, at the least once every 3 weeks. She was also seeing another Dr at the hospital every other month, but he has decided that our new Dr has it under control, so he will not start seeing her again until she is in remission. After her eye appointment in Arlington we drove to Dallas to have her blood work done at Scottish Rite Hospital to make sure everything is still great with her body as she takes the chemo. So far there has been no negative effects, and I am sure the results will remain the same. Once her eye is fully weened of drugs and stays clear, they will start to lower her doses of Methotrexate until she is off of it. It is still a long way down the road, but it is in view now, and Decota is thrilled to feel like it really might come. She does not have any more appointments until January when she will have her next blood work done and her rheumatology check up, and then February for her eyes. She feels so free!!! As we walked out of the hospital she said "Have I ever told you how much I LOVE MY hospital?". Yes- every time we come she tells me several times, but I will never tire of hearing how much she loves it. I love it too!

2nd- I had my check up today and I am crutches free- well technically. I am slow, and get very tired fast as my leg cramps up as I try to walk, but I will get there. It is amazing how fast you forget how to walk, and my kids make fun of me as I remind myself how to place my foot- but this walking thing is harder than you realize. I am just so excited to get moving on my own again and only have a few limitation put on me and not tons. I am supposed to be jogging for 30 min by my next appointment in 6 weeks. Right now that seems impossible to me, but I know I will get there before I know it.

3rd- Rodney is on his way home. Need I say any more.

Last, but certainly not least- TWILIGHT IS OUT IN THEATERS IN 2 DAYS. I am going to get my ticket tonight. I can't wait! I certainly don't think it will be as absolutely wonderful as the book, but I am HOPING it will do it enough justice. I can't wait to fall for Edward all over again:)

So this concludes my good news for today- YEAH!!!!!!!!!!!!!!

7 comments:

Alicia said...

Yea for Twilight!! I'm so excited too! I'm glad that you and Decota are doing well. Hopefully this means a doctor break for the holidays!

melanie said...

that is such great news Chanel!! I am glad that Decota is making such great progress and that you are too...
As for Twilight, I bought my ticket the day I could and am also very excited to watch the movie, although I feel the same with you about it probably will not be as good as the book. To bad you are not closer, we could have gone together....

Alicia said...

Hey who are you going with?

laurak said...

I'm so happy that you are both doing so well. That is amazing that you are supposed to go from learning to walk to jogging for 30 min 6 weeks. I couldn't do that and I don't even have to learn how to walk again.

Chels said...

I am going to a midnight showing of twilight tonight with the girls and I can't wait. I am so happy to hear about Decota. She is so strong and a rock to even her aunts and uncles. Your knee will get there before you know it, just take your time. Love and miss you guys.

Brittani said...

I loved hearing that news, hurray for teh Johnsons! I had a ticket for the midnight showing, but considereing my condition, I will not make it (sniff,sniff). I will see it next week with Grant's family. Have fun, love you all!

Cindi said...

Chanel you don't even know how much I appreciate when you call and tell me what is going on after each appointment. It makes me feel more apart of your lives when I seem so far away many times. Thank goodness for Southwest tickets though! Love you all